|
|
Guestbook
Name: | Darrell Reeves |
Email: | darrellreeves{at}gmail.com |
HomePage: | http:// |
Where are you from: | Troy, NC |
Comments: | Wow, what an amazing an uplifting story! |
| May 17, 2009 10:05:25 (GMT Time) |
Name: | Chad Krueger |
Email: | cakrueger44{at}verizon.net |
HomePage: | http:// |
Where are you from: | Murrieta, California |
Comments: | Your a fighter kid, just like your Mom. God Bless you Knight Lili! |
| January 12, 2008 07:19:25 (GMT Time) |
Name: | Andie |
Email: | andie646c{at}yahoo.com |
HomePage: | http://ftbt.acray.com |
Where are you from: | Texas |
Comments: | Just stopping by to say Lili is still VERY adorable.
And to let you know my baby was born August 18th. A girl, we named her Annie Lynn. She lived for 20 minutes ... I am so proud of her.
Thanks for sharing Lilis story with everyone, she (and you) are really an inspiration to everyone.
Annies (Baby Nichols) site has been shut down, well, its up ... but no more updates, I've been locked out. I still check the message board and put an update there. The person I share the server with changed the password right before Annie was born so that's when updates stopped.
Anyway, Just wanted to let you know those things. Hope you have a great Thanksgiving and Christmas. |
| November 19, 2007 04:48:52 (GMT Time) |
Name: | Jamie |
Email: | vette0576{at}aol.com |
HomePage: | http:// |
Where are you from: | Bellevue, Michigan |
Comments: | I've been reading about Lili since the article in the Lansing State Journal when she was so small! I've read about the kidney transplant, the struggle to get her to eat "real" food... You have an amazing little girl and I enjoy being able to keep up with how she's doing. I hope all turned out well last week and that you were able to find out what was wrong. God bless you all...
-jamie |
| October 1, 2007 16:38:32 (GMT Time) |
Name: | Andie |
Email: | andie646c{at}yahoo.com |
HomePage: | http://ftbt.acray.com |
Where are you from: | Odessa, TX |
Comments: | Hey, I sent you an email in response to the comment you left on my guestbook ... not sure if you got it or not ... I sent it a few days ago .. Lili is still the most adorable little girl I have seen and Im so glad to be able to come to your page to read updates and hear that she is still doing as awesome as ever :-) |
| July 29, 2007 17:46:29 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| July 24, 2007 06:46:19 (GMT Time) |
Name: | alicia Kramer |
Email: | am9kramer{at}hotmail.com |
HomePage: | http:// |
Where are you from: | Monroe, MI |
Comments: | Hi Julie,
I met you at the U of M, my daughter Libby has Maria for speech. I wanted to see how you and Lili were doing. Hope you are having a great summer. |
| July 2, 2007 18:17:51 (GMT Time) |
Name: | Andie |
Email: | andie646c{at}sbcglobal.net |
HomePage: | http://myspace.com/andie646 |
Where are you from: | Odessa, TX |
Comments: | I just wanted to say thank you for putting this website up. It has given me hope in a time when hope is a hard think to find. You truely have a miracle baby and I now know, despite what my doctor says, that survival for my child is not out of the question. I do however have some questions I would like to ask you so if you would please send me an email or something. (I would like to ask about the dialasys and the transplant and such).
Thank you again for putting up this site. |
| May 28, 2007 09:05:51 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| February 22, 2007 04:55:23 (GMT Time) |
Name: | Julie Newland |
Email: | janewland{at}hotmail.com |
HomePage: | http:// |
Where are you from: | Hemlock, Mi - live in Ypsilanti, Mi |
Comments: | I'm Lili's mommy and I'm soooo lucky! She is somethin' else!!! :) |
| February 22, 2007 04:49:39 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| February 22, 2007 04:40:55 (GMT Time) |
Name: | gervonne Jefferson |
Email: | tiggerzprincezz0{at}yahoo.com |
HomePage: | http:// |
Where are you from: | detroit, Mi |
Comments: | i just wanted to say hi and i hope everything is going well! i had fun the few times i have spent with lilli |
| January 30, 2007 21:54:33 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| December 14, 2006 16:43:47 (GMT Time) |
Name: | nancy |
Email: | harleygirlchicago{at}yahoo.com |
HomePage: | http:// |
Where are you from: | Chicago (now in Maine) |
Comments: | Hi Julie,
I check in every now and then to see how Lili's doing - you are an amazing person for going through all this. She's such a cutie - and no doubt a miracle. It's a wonderful thing you've done to keep this page too - for others going through the same thing.
Nancy |
| October 20, 2006 01:43:41 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| August 12, 2006 22:14:35 (GMT Time) |
Name: | Alex Ferrill |
Email: | alex{at}alexcferrill.com |
HomePage: | http://www.alexcferrill.com |
Where are you from: | Colorado |
Comments: | Julie-
I had been thinking about you recently and did a name search on you and found your daughters website. I had heard from Aaron that you had a baby but didn't hear any of the details. You and your daughter look beautiful together. Her story is miraculous profoundly touching (we should all be so luck to be that strong). I find more and more that life is so precious and to be grateful for all that I have. I wish you and your family all the happiness in the world.
-Alex |
| August 9, 2006 15:11:05 (GMT Time) |
Name: | Brendan Cain |
Email: | brendancain{at}gmail.com |
HomePage: | http:// |
Where are you from: | Ohio |
Comments: | Wow...I guess you really have to go through a great deal to witness a miracle. Congratulations and all my prayers for her continued health. |
| August 3, 2006 02:50:33 (GMT Time) |
Name: | Rasheed Gbadegesin |
Email: | rasheedg{at}med.umich.edu |
HomePage: | http:// |
Where are you from: | U OF M |
Comments: | Wonderful website. We are all happy that Lili is doing well. GOOD JOB MOM AND DAD |
| July 22, 2006 01:57:14 (GMT Time) |
Name: | Flora Bailey |
Email: | mel-florabailey{at}juno.com |
HomePage: | http:// |
Where are you from: | Farmington Hills, Michigan |
Comments: | God bless all of you. God is good. Man plans his way but the Lord directs his steps. God had and does have special plans for all of you. |
| July 11, 2006 00:57:09 (GMT Time) |
Name: | John D Grob |
Email: | johngrob{at}gmail.com |
HomePage: | http:// |
Where are you from: | The Burbs of the D |
Comments: | Its Lili's world and we are all living in it! Love! |
| July 8, 2006 22:01:28 (GMT Time) |
Name: | Katy Sigler |
Email: | kathsigl{at}umich.edu |
HomePage: | http:// |
Where are you from: | Dr. Kershaw/Smoyer/Brophy/Lins office |
Comments: | I just saw the article in the paper here at the office and visited your web page.. Thanks for such an insperational story... katy |
| June 20, 2006 17:56:59 (GMT Time) |
Name: | Todd Sheets |
Email: | me{at}toddsheets.com |
HomePage: | http://www.myspace.com/toddsheets |
Where are you from: | Ann Arbor |
Comments: | I am very glad that I met you and had a chance to get to know you through your wonderfully written pages. You are blessed. |
| June 7, 2006 14:26:31 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| June 2, 2006 02:16:31 (GMT Time) |
Name: | Michelle M. Kanuszewski |
Email: | michelle31272{at}yahoo.com |
HomePage: | http:// |
Where are you from: | Hemlock High |
Comments: | Thinking of you & yours, Jules. God Bless. Hope all is well. Saw your folks today, made me think of you so I thought I would drop a line. Take Care. Love & Friendship, Michelle 989 798-1262 or Michelle31272@yahoo.com |
| April 25, 2006 22:34:36 (GMT Time) |
Name: | Lynda Wilson |
Email: | lindypop@ntlworld.com |
HomePage: | http://www.remembering-elliott.co.uk |
Where are you from: | Leeds, West Yorkshire, England |
Comments: | Hiya Julie, Bruce and Lili
I just stopped by to re-read your lovely webpages as you came and visited the Potters Forum with a brief update.
I hope and pray that Lil continues to thrive and put trust in God that she will always give you a lifetime of joy and happiness.
With love from England - wishing you all the best for 2006!
Hugs
Lynda
xxxxx |
| January 15, 2006 11:17:26 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| November 19, 2005 00:34:59 (GMT Time) |
Name: | Barbara OBrien |
Email: | |
HomePage: | http:// |
Where are you from: | Friend of Lois Whitaker |
Comments: | Very touching story - I'm so glad Lili is going good - she is so cute!
Very nice web site. |
| November 4, 2005 17:15:02 (GMT Time) |
Name: | Michael |
Email: | moquesha@avci.net |
HomePage: | http:// |
Where are you from: | Pigeon, MI |
Comments: | Just checking in. I love the updates. I miss you. Keep up the good work! |
| November 2, 2005 22:42:48 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| October 29, 2005 16:55:35 (GMT Time) |
Name: | Laura Haddad - aka Lala or Yo Yo Lala |
Email: | lalacamel@yahoo.com |
HomePage: | http:// |
Where are you from: | |
Comments: | Hi Lili- What a nice website you have for such a small girl. You are very talented! Keep writing with sidewalk chalk and I'll see you soon. Luv,Lala |
| October 26, 2005 19:28:58 (GMT Time) |
Name: | Amber |
Email: | amber_billings2212@yahoo.com |
HomePage: | http:// |
Where are you from: | Augusta, GA |
Comments: | I found your Web site from the LDO message board. Yours and Lili's stories are wonderful! :) And she is such a doll! I am a fellow living donor. I donated my right kidney to one of my cousins in August. Both of us are doing great. I love reading about other people's stories. Lili is so lucky to have a mother like you! :) |
| October 19, 2005 00:47:37 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| September 23, 2005 16:38:28 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| July 28, 2005 21:35:48 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| June 30, 2005 14:18:11 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| May 20, 2005 14:55:41 (GMT Time) |
Name: | Karen |
Email: | kboehl@emich.edu |
HomePage: | http:// |
Where are you from: | Ypsi |
Comments: | Hey Julie, I was just checking out the site, and I love it! Lili is such a cutie! |
| May 14, 2005 01:26:26 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| May 11, 2005 21:15:39 (GMT Time) |
Name: | Auntie Adrienne |
Email: | adenewland@aol.com |
HomePage: | http:// |
Where are you from: | |
Comments: | Lili -- you are growing so fast and changing soooo much. I miss you and love you. Tell your mommy she's doing an awesome job with your website. |
| May 11, 2005 21:01:51 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| May 5, 2005 23:40:26 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| March 29, 2005 18:45:12 (GMT Time) |
Name: | Joy Hadley |
Email: | hadz4@comcast.net |
HomePage: | http:// |
Where are you from: | Clarkston, MI |
Comments: | Wonderful parents !!! I admire you both. |
| February 15, 2005 17:17:35 (GMT Time) |
Name: | Matt Bohn |
Email: | |
HomePage: | http:// |
Where are you from: | Hemlock |
Comments: | Hey Jules---thinking of you and Lili. Saw the latest updates and you're in my prayers. Take care and call or write if you need anything. |
| February 9, 2005 02:18:27 (GMT Time) |
Name: | Kimmae |
Email: | Klyn100000@hotmail.com |
HomePage: | http:// |
Where are you from: | my momma |
Comments: | Hello guys just checking out the site. Lots of love,
Kim |
| February 7, 2005 19:20:49 (GMT Time) |
Name: | Liz |
Email: | Wielinski@aol.com |
HomePage: | http:// |
Where are you from: | The Great Hurricane State |
Comments: | Hey, I've visited the website numerous times however I just realized that I don't think I've ever signed the guest book. I guess I should make my visits official, so here it is! Glad to hear that Lili and a great December. Happy New YEar! |
| January 17, 2005 22:48:02 (GMT Time) |
Name: | Amy Yachasz |
Email: | amy.yachasz-eds@eds.com |
HomePage: | http:// |
Where are you from: | Lansing, Michigan |
Comments: | I first read a local article in the Lansing State Journal about Lili in May/June of 2004. Little Lili is so amazing. I have saved the site in my favorites and check in from time to time on progress. All I have to say to Lili is "YOU GO GIRL"!! May health & happiness surround you, this New Year. |
| January 3, 2005 21:23:42 (GMT Time) |
Name: | myra levin |
Email: | myralevin@att.net |
HomePage: | http:// |
Where are you from: | skokie |
Comments: | Well it os showtime again at LOW so Sherie and I have been filling in. I visit your web sight at least once a week. Lili is just a doll. She looks just like you. I thoroughly enjoy your pictures. Her halloween costume was just too cute. Did you make it?
How is her burned paw? Take care and a HEALTHY, happy New Year to you all. |
| December 31, 2004 06:17:49 (GMT Time) |
Name: | Irene LaVictoire |
Email: | ijlav@worldnet.att.net |
HomePage: | http:// |
Where are you from: | 3308 Beecher Rd., Flint, 48503 |
Comments: | Julie, could you please send me your address so I can send you and Lili a Christmas card. My phone number is 8102327927. Lili looks so great in the pictures. Merry Christmas. |
| December 24, 2004 05:03:05 (GMT Time) |
Name: | Angel Foley |
Email: | afoley74@comcast.net |
HomePage: | |
Where are you from: | Michigan |
Comments: | Wow Lil's! You are growing up so wonderfully! I love looking at pictures of you, mommy, and daddy! You just keep on tearing it up. I miss you, baby girl! You are truly a miracle! |
| November 30, 2004 03:00:14 (GMT Time) |
Name: | Kelley |
Email: | Kelley@mksbk.com |
HomePage: | http:// |
Where are you from: | Illinois |
Comments: | Hi! I am a friend of Angel's and she has talked about Lili SO much! I have prayed for you all and I am so glad that things are going well for you. She is such an angel! My best to you! |
| November 23, 2004 02:51:46 (GMT Time) |
Name: | Vicky West |
Email: | vwest58@charter.net |
HomePage: | http:// |
Where are you from: | you already know |
Comments: | great web site, will visit often, Love and best wishes to all |
| November 19, 2004 04:36:19 (GMT Time) |
Name: | Linda diGregorio |
Email: | ldigregorio2ciafg.com |
HomePage: | http:// |
Where are you from: | Aunt Linda |
Comments: | Julie, You are doing such a great job. Keep up the good work. When ever i am in a bad mood or having a bad day I just look at Lili's website and it brightens my day:) |
| October 5, 2004 19:05:58 (GMT Time) |
Name: | Jason Clarke |
Email: | jasonclk@umich.edu |
HomePage: | http://www.kidneygenes.com |
Where are you from: | U of M Dept. of Pediatrics |
Comments: | Just wanted to give you my contact info again. Email me if you want the lab phone.
Jason |
| September 30, 2004 18:22:27 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| September 29, 2004 19:54:01 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| September 21, 2004 01:29:32 (GMT Time) |
Name: | Lori Aleixo Howard |
Email: | alexa1027@aol.com |
HomePage: | http:// |
Where are you from: | Maple Shade, NJ |
Comments: | Hi Julie,
It's wonderful to see that you and Lili are doing so well. You both are so very brave and truly inspiring. I am honored to say that I knew you way back when donw at crazy FST!
Best of luck to you, Lili and your family. God Bless!
Love,
Lori |
| August 30, 2004 15:24:48 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| August 27, 2004 13:33:51 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| August 18, 2004 03:28:04 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| August 12, 2004 16:38:13 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| August 8, 2004 04:23:20 (GMT Time) |
Name: | Shelly Dowdle |
Email: | shellyd@bryanskidneypage.org |
HomePage: | http://www.bryanskidneypage.org |
Where are you from: | Billings Montana |
Comments: | Hi there. My little boy was born with kidney failure too. They told us he would be stillborn and even after he was born alive they didn't think we should treat him.
Well, Bryan is now 12 years old and just over 7 years post transplant (I donated to him)! He's doing great!
I hope that Lili has many happy years with her "slightly used" kidney!
Have you heard of the US Transplant Games? Bryan just competed, it's an amazing event.
Shelly |
| August 7, 2004 22:07:53 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| August 7, 2004 18:32:17 (GMT Time) |
Name: | Dan Heerts |
Email: | dactyldude@aol.com |
HomePage: | http:// |
Where are you from: | LaCrosse |
Comments: | Glad to hear you are both doing well. We keep you in our thoughts and prayers.
Your friends from LaCrosse!! |
| August 5, 2004 13:58:07 (GMT Time) |
Name: | Kathhy Willis |
Email: | rkmbkl123456@aol.com |
HomePage: | http:// |
Where are you from: | texas |
Comments: | my sister in law is 31 1/2 weeks pregnant with her son. She found out @ 20 weeks that he has multicystic kidney, and one missing. She now has no fluid left but he is very active. She is going to have a steroid shot in two weeks. not sure it will help the lungs, but worth a shot. we believe in a miricle working God. If he can do it for Lili, he can do it for Rhett. Your page is the only miricle page I have come across. Your prayers would be greatly appreciated. please email me back thank you kathy |
| August 4, 2004 20:19:45 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| July 22, 2004 20:26:58 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| July 15, 2004 17:42:02 (GMT Time) |
Name: | Sherry |
Email: | nsidedog@starband.net |
HomePage: | http:// |
Where are you from: | New Mexico |
Comments: | Julie, I love looking at pictures of Lili. She is such a doll! I'm donating a kidney to my hubby on 7/28/04 and I love reading stories of donors and recipients. Thanks for sharing your journey.
Sherry |
| July 11, 2004 01:10:42 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| July 6, 2004 20:37:25 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| July 4, 2004 02:12:18 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| June 29, 2004 12:38:31 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| June 23, 2004 17:44:35 (GMT Time) |
Name: | Shirley Purdy |
Email: | purdysb@yahoo.com |
HomePage: | http:// |
Where are you from: | Mt. Hope United Methodist Church |
Comments: | Julie - What a miracle!!! We are so truly thankful that you and Lili came through surgery so well - what an answer to prayer! We will continue to pray for your strength and quick recovery (although Lili sounds like she is well on her way - of course, what do you expect from such a miracle baby!!). Let me know if there is any way that I can be of assistance to you; also many others from Mt. Hope are praying and willing to help. In Christ, Shirley Purdy |
| June 22, 2004 13:34:11 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| June 21, 2004 15:48:36 (GMT Time) |
Name: | Tina Newton |
Email: | chrysteena@msn.com |
HomePage: | http://www.geocities.com/kaitlynfaithnewton |
Where are you from: | Potterville, Michigan |
Comments: | May God bless you and your family. Your little angel is truly a miracle! Your story has touched my heart, and I will keep you in my prayers. |
| June 21, 2004 00:10:00 (GMT Time) |
Name: | Audrey |
Email: | putman_family@yahoo.com |
HomePage: | http:// |
Where are you from: | Mt. Hope United Methodist Church |
Comments: | We've been praying for both of you. Hope you will be well enough to join us for the contemporary service soon (It's moving to Sunday morning at 11:30). Take care and God bless. |
| June 19, 2004 23:36:20 (GMT Time) |
Name: | Nichole |
Email: | momof4CWs@aol.com |
HomePage: | http://www.caringbridge.org/va/carterman |
Where are you from: | Norfolk, Va |
Comments: | I found your webpage through the living donors online message board. I REALLY enjoyed perusing your website. Although my son's problems were different, I can relate so much to the battles you've endured. I hope all is still going well! Love and prayers from Nichole & Carter, living related Small Bowel transplant, 1/24/03, doing great ;-) |
| June 19, 2004 22:50:37 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| June 16, 2004 16:19:07 (GMT Time) |
Name: | Jackie McKee |
Email: | jmmckee@ediscompany.com |
HomePage: | http:// |
Where are you from: | Quinton, New Jersey |
Comments: | This is a wonderful story. I am so glad that Lili is doing great! |
| June 16, 2004 11:49:36 (GMT Time) |
Name: | Carol Dwan |
Email: | crdwan@excite.com |
HomePage: | http:// |
Where are you from: | |
Comments: | Hi Julie,
What a great gift you gave your daughter! Lili's story is amazing. We're still keeping you in our prayers.
Love Carol & Mike |
| June 15, 2004 02:41:46 (GMT Time) |
Name: | Sharleen Jespersen |
Email: | |
HomePage: | http:// |
Where are you from: | Michigan |
Comments: | I'm a friend of Millie Manks. What a beautiful child.
Besh wishes for a speedy recovery! |
| June 14, 2004 14:32:44 (GMT Time) |
Name: | The Webster Family |
Email: | hingwesu@msu.edu |
HomePage: | http:// |
Where are you from: | East Lansing, MI |
Comments: | HELLO. We're keeping you in our thoughts and wish you a very safe and speedy recovery. The LSJ articles were informative.
Roger, Sue (Swapna's sister), Kiran and Tara Webster |
| June 12, 2004 13:58:15 (GMT Time) |
Name: | Alicia Wolinski |
Email: | allykatt29@aol.com |
HomePage: | http:// |
Where are you from: | Hemlock, Michigan |
Comments: | Wow Jules!!!! Lily is soooooooooooooooooooooo cute!!!!! I'm glad to hear things went ok. I will keep you in my prayers. Please give that cute lil bugger a hug for me!!
LOve,
Alicia |
| June 11, 2004 12:02:30 (GMT Time) |
Name: | Travis |
Email: | tdwalters@comerica.com |
HomePage: | http:// |
Where are you from: | detroit |
Comments: | I'm glad the operations went well. I'm praying for a full recovery for the both of you. You and your family are blessed to have one another and Good luck in the future. |
| June 10, 2004 14:51:35 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| June 10, 2004 03:24:05 (GMT Time) |
Name: | Patti |
Email: | plv3boys@juno.com |
HomePage: | http:// |
Where are you from: | New Jersey |
Comments: | Angel Foley is a friend of mine and has shared Lilis story with me. I have been praying for you and thinking of you. |
| June 9, 2004 02:39:55 (GMT Time) |
Name: | Joy Hadley |
Email: | hadz4@comcast.net |
HomePage: | http:// |
Where are you from: | Bruce's Aunt |
Comments: | Bruce loves his little girl with all of his heart and soul.
Julie is an amazing woman. I admire the way she is always smiling and so kind whenever I see her. |
| June 9, 2004 02:02:29 (GMT Time) |
Name: | Joy Hadley |
Email: | hadz4@comcast.net |
HomePage: | http:// |
Where are you from: | Bruce |
Comments: | |
| June 9, 2004 02:00:47 (GMT Time) |
Name: | Joy Hadley |
Email: | hadz4@comcast.net |
HomePage: | http:// |
Where are you from: | Bruce |
Comments: | |
| June 9, 2004 02:00:47 (GMT Time) |
Name: | Julie Finn |
Email: | moorfinn@hotmail.com |
HomePage: | http:// |
Where are you from: | Port Huron |
Comments: | I have been praying for your family from before princess lili was born. My husband works with lili's uncle (I believe...) His name is Eric Finn and works for Lear, I believe his Uncle works for GM, and that is the connection. Our bundle was born May 6th 2004. I connected with the story being a new mom myself, I didnt know how anyone could cope with such a hard decision. I am so glad to hear you are all doing fine, and hope that your transplant was a success. You are in my thoughts daily, and also the thoughts of my husband, and each night when Conor says his prayers, we remember Lili. |
| June 8, 2004 18:09:05 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| June 8, 2004 17:37:36 (GMT Time) |
Name: | Jeanette Wilkins Tammi's Mom |
Email: | wilkinsgj@yahoo.com |
HomePage: | http:// |
Where are you from: | Hemlock, Mi |
Comments: | Just looking to see how things went...no news is good news as all must be well..
Jeanette |
| June 8, 2004 14:01:37 (GMT Time) |
Name: | kelly kelting |
Email: | premierepainting@charter.net |
HomePage: | http:// |
Where are you from: | grand rapids |
Comments: | Julie, I miss you and wish you and your daughter lots of luck. Hope to see you soon. |
| June 8, 2004 14:01:19 (GMT Time) |
Name: | Joyce Trivett |
Email: | joycetrivett@comcast.net |
HomePage: | http:// |
Where are you from: | Ellicott City MD |
Comments: | Hi Lili and Julie, I just saw a post on Living Donors Online and saw that your surgery was today, I hope that all went well. God Bless you and your entire family! Please let us all at Living Donors Online know how everything turns out. |
| June 8, 2004 05:20:43 (GMT Time) |
Name: | Shelley Whitaker |
Email: | Shalonian@hotmail.com |
HomePage: | http:// |
Where are you from: | Orion, Michigan |
Comments: | lili's cousin!!!! |
| June 8, 2004 01:39:12 (GMT Time) |
Name: | Matt Bohn |
Email: | mmbohn1977@hotmail.com |
HomePage: | http:// |
Where are you from: | Hemlock, MI |
Comments: | Hey Jules--praying for you 2 today. I will talk to you soon. |
| June 7, 2004 23:42:51 (GMT Time) |
Name: | Jeanette Wilkins Tammi's Mom |
Email: | wilkinsgj@yahoo.com |
HomePage: | http:// |
Where are you from: | Hemlock, Mi |
Comments: | We are thinking of you and praying for you all day. You kids deserve the best.
Jeanette |
| June 7, 2004 14:39:43 (GMT Time) |
Name: | Amy Yachasz |
Email: | |
HomePage: | http:// |
Where are you from: | Holt, Michigan |
Comments: | Wishing you luck for your surgery today! Thoughts & prayers are with you & your family. |
| June 7, 2004 14:35:10 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| June 4, 2004 23:47:11 (GMT Time) |
Name: | Jamie Snow |
Email: | drsnow@voyager.net |
HomePage: | http:// |
Where are you from: | Mason, MI |
Comments: | Best of luck Lili and Julie. I'm Brenna's mom, and Adrienne's friend. Don't know if you remember me, but I'll be thinking of both of you on Monday!!! Lots of love, Jamie and Brenna |
| June 4, 2004 23:45:53 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| June 4, 2004 23:16:41 (GMT Time) |
Name: | Bayleigh |
Email: | BPenrod93@msn.com |
HomePage: | www.msn.com |
Where are you from: | Lansing |
Comments: | I am Angel Foley's daughter. Lili is adorable. She is so sweet. I am looking forward to seeing her this summer!! |
| June 4, 2004 23:14:33 (GMT Time) |
Name: | Bayleigh |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| June 4, 2004 23:12:26 (GMT Time) |
Name: | Kim (Eymann) O'Berry |
Email: | ponddiggers@tds.net |
HomePage: | http:// |
Where are you from: | Lansing, Worked with mommy at Wohlert |
Comments: | Jessica,
Wanted to wish you the best of luck with the transplant. I couldn't believe it when I saw you on the front page of LSJ. What a miracle! I am so happy that you and Lili will be able to have a great life together. I have two girls of my own, 5 and 2, and can't imagine what you must have been going through. You are both in our thoughts and prayers. I will check back on the surgery progress.
Love, Kim |
| June 4, 2004 20:57:15 (GMT Time) |
Name: | Kim Camp |
Email: | camp@msu.edu |
HomePage: | http:// |
Where are you from: | East Lansing |
Comments: | Reading your story brings back so much. I lived at U of M for a lot of years with my daughter and before that at Ingham Medical in Lansing. We lived through broviacs, pd catheters, gtubes, blood draws. But you know? Ours is a very successful story. 25 years later, my beautiful daughter,(my first too) is going to be 27 years old and is too a medical miracle. Don't you ever give up and when you get tired you call me for help and I will be there for you. I promise. |
| June 4, 2004 14:53:44 (GMT Time) |
Name: | Christy Holman |
Email: | christydholman@yahoo.com |
HomePage: | http:// |
Where are you from: | Lansing,Mi |
Comments: | I came across your story in the LSJ and visited your wonderful web site. Lili is a beautiful little one and you are truly blessed!!! Thank you for sharing your personal story. I will be praying for a successful transplant and speedy recovery for both of you!! By the way... excellent pictures!! |
| June 3, 2004 23:17:31 (GMT Time) |
Name: | Diane Belair |
Email: | belair13@gokenora.com |
HomePage: | http:// |
Where are you from: | Kenora, Ontario. Canada |
Comments: | What a beautiful child. We pray for your family. We too have a grandson who was born with PUV now age four who will some day require a transplant, hopefully not until his early teens. She truly is a miracle. |
| June 3, 2004 22:27:47 (GMT Time) |
Name: | Mira M. |
Email: | mim_mimra@yahoo.co.uk |
HomePage: | http:// |
Where are you from: | Poland |
Comments: | Hello,
I'll be praying and sending Reiki to you both on that BIG day
:o) love
Mira |
| June 3, 2004 21:20:11 (GMT Time) |
Name: | mark |
Email: | mark(at)lousydog(dot)com |
HomePage: | http://www.lousydog.com |
Where are you from: | holt, mi |
Comments: | Read Lili's story today. Best wishes for a successful transplant, speedy recovery and many blissful years to come for you and your family. Peace. |
| June 3, 2004 20:46:44 (GMT Time) |
Name: | sandy |
Email: | tysyd36@yahoo.com |
HomePage: | http:// |
Where are you from: | elsie Mi |
Comments: | I seen your story in LSJ and wanted to wish you the best of luck on Monday and You and LILI will be in our prayers for a speedy recovery.
Sandy and Family |
| June 3, 2004 18:03:33 (GMT Time) |
Name: | BOBBI HART |
Email: | Bobbihart41@hotmail.com |
HomePage: | http:// |
Where are you from: | perry mich |
Comments: | she is a miracle. I don't know how you do it you are a very strong person. She is the most precious thing. I have a daughter and i could not imagine going thru any of this. You are very special people and i will keep you in my prayers GOOD LUCK and make sure you let us know how things are |
| June 3, 2004 17:38:57 (GMT Time) |
Name: | Melissa |
Email: | mmaluchnik@hotmail.com |
HomePage: | http:// |
Where are you from: | Lansing, Michigan |
Comments: | I just saw the article in the LSJ and decided to check out the website! I am sitting at work with tears running down my face! I wish you all the best of luck and know after reading Lilis story that she will continue to fight! I have a 1 year old son (a month younger than Lili)and can't even imagine what you are going through. Keep strong and know all will be okay. |
| June 3, 2004 16:16:19 (GMT Time) |
Name: | Travis Walters |
Email: | bigwalttd@yahoo.com |
HomePage: | http:// |
Where are you from: | Originally Grand Ledge but now I live in West Bloomfield |
Comments: | Your entire family will be in my prayers and I know the sugery will go well. God Bless.
Travis and Family |
| June 3, 2004 15:01:30 (GMT Time) |
Name: | conrad m malloy |
Email: | cmalloy38@sbcglobal.net |
HomePage: | http:// |
Where are you from: | lansing |
Comments: | I am a volunteer for The Gift of Life of Michigan organization, who maintains the registry for organ, tissue, bone marrow, cornea transplants. My grandson from Bath, Michigan wqas also born under similar conditions twenty years ago. He had on kidney that functioned at 80%, two years ago he had a kidney trtansplant. His father was going to be the donor, however just a week before the scheduled surgey, a better match was found from a deceased donor in Illinois.Since that time my wife and I have been avid supporters of the donor registry. Coincidence that this article should appear in todays paper? I think not, because just last night I was pondering in my mind an E-mail I was going to send John Scneider to inform people that have signed the back of their licenses that the best way to insure their intentions are followed is to register with the Gift of Life, and to tell their families of their wishes. Because upone every death in a Michigan hospital a call is placed to Gift of Life to see |
| June 3, 2004 13:39:13 (GMT Time) |
Name: | Francine |
Email: | frobson@o2.ie |
HomePage: | |
Where are you from: | Dublin Ireland |
Comments: | We are all praying for all of you.
Good luck.
Francine |
| June 3, 2004 09:53:46 (GMT Time) |
Name: | Chase Looney |
Email: | samson47@grundynet.net |
HomePage: | http:// |
Where are you from: | Virginia |
Comments: | May God Bless All the Family. Prayers and Reiki will be sent by many. There is
strength in numbers. |
| June 2, 2004 23:25:12 (GMT Time) |
Name: | Milena McDonald |
Email: | milena@swiftdsl.com.au |
HomePage: | http:// |
Where are you from: | Sydney, Australia |
Comments: | I just wanted to say thanks for this great site, Lili reminds me so much of my son Joshua (also has CRF), you went through a very similar situation as we did before Joshua was born. I love reading what is next for Lili, Joshua is not on dialysis/transplanted yet he is 26 months old and doing very well with his 22% kidney function but like Lili will need a kidney transplant in the future and I hope to be the donor also, so reading what you are going through will give me an indication of what it is going to be like in the future....so thanks again.
Kind regards
Milena - Sydney Australia.
|
| May 30, 2004 22:28:19 (GMT Time) |
Name: | Lisa |
Email: | Lisa17436@aol.com |
HomePage: | |
Where are you from: | Curves Hemlock/Merrill |
Comments: | Hi, I just wanted you to know that Grandma Berger dropped off some info about Lili so I decided to take a look at your page! Lili is so cute and she sounds like a very strong little girl! I wish the best of luck to the both of you, you will be in my thoughts and prayers! p.s. I keep telling everyone that I dont wanna ever have children, but if I could have a little girl as CUTE as Lili I would have one in a second :) Lisa |
| May 27, 2004 22:17:03 (GMT Time) |
Name: | Jeanette Wilkins Tammi's Mom |
Email: | wilkinsgj@yahoo.com |
HomePage: | http:// |
Where are you from: | Hemlock, Mi |
Comments: | Hi Kids, I got your address from Curves
yesterday and had to look. We have been thinking about you alot. I sent your address to Tammi this morn. I have heard that sometime the week before Father's Day Jeff Gordon the race driver will be visiting Mott hospital. Maybe Lili will get to meet him. He is really good about doing things for kids. We will keep you in our prayers and even put you in the petitions at church if you are not already there. Love, J |
| May 27, 2004 14:30:45 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| May 18, 2004 22:57:01 (GMT Time) |
Name: | Michael |
Email: | |
HomePage: | http://www.livingdonorsonline.org |
Where are you from: | Atlanta, GA |
Comments: | Wishing you and Lili a successful donation, transplant, and speedy recoveries! |
| May 18, 2004 00:50:32 (GMT Time) |
Name: | Kelley Johnson |
Email: | kelley@mksbk.com |
HomePage: | http:// |
Where are you from: | Illinois |
Comments: | Angel told me about Lili's page, my prayers are with you all!! |
| May 13, 2004 03:02:51 (GMT Time) |
Name: | Angel Foley |
Email: | AFoley74@msn.com |
HomePage: | |
Where are you from: | DeWitt |
Comments: | Julie and Lili, you two are the most amazing people I have ever met! This webpage is great! I will check back often for pictures and progress :-) |
| May 13, 2004 02:25:37 (GMT Time) |
Name: | Barb Herman |
Email: | |
HomePage: | http:// |
Where are you from: | Ishpeming, Michigan |
Comments: | Our thoughts and prayers are with you through out the transplant surgeries. Things will be so much better afterwards. Love to all of you. Barb |
| May 8, 2004 02:33:32 (GMT Time) |
Name: | Jarrell |
Email: | jarrell@elvis.com |
HomePage: | |
Where are you from: | Cleveland, OH |
Comments: | Hey Julie and Lili, you'll be in our thoughts for your operation and recovery. Take care! |
| May 6, 2004 01:56:13 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| April 26, 2004 01:59:12 (GMT Time) |
Name: | Grandma Kathy |
Email: | ktirzah@concentric.net |
HomePage: | http:// |
Where are you from: | Hemlock Mi |
Comments: | It touches my heart to hear all the wonderful comments from everyone. We are truely blessed. And Grandpa and I are so lucky to have such a remarkable and wonderful granddaughter and daughter -- we love you Lili and Julie. And thank you Julie for taking such great care of our little blessing! |
| April 8, 2004 18:37:32 (GMT Time) |
Name: | Jan-Maree Wilson |
Email: | wwyliek@aol.com |
HomePage: | http:// |
Where are you from: | Queensland, Australia |
Comments: | Our baby Tyler was born 9 April 03, our pregnancy story is similar to yours. When born he looked so perfect and he was trying to cry so I thought they had got it all wrong. Tyler lived for only 1 hour. Not long after I came across your site via the Potters Website. I have this listed as one of my favourite places so I can visit and see how Lili is going.
Best of luck
Jan-Maree |
| April 5, 2004 11:48:52 (GMT Time) |
Name: | Tom Falsey |
Email: | tfalsey@kc.rr.com |
HomePage: | http:// |
Where are you from: | Overland Park, KS (originally from Midland Michigan) |
Comments: | I enjoyed visiting your site and learning about your experiences.
I am writing a book on organ transplantation and would like to include Lili's story if you permit me to do so. It is a wonderful story.
Please email me at the above address and I will provide more information. |
| April 3, 2004 20:43:05 (GMT Time) |
Name: | nancy ouellet |
Email: | harleygirlchicago@yahoo.com |
HomePage: | http:// |
Where are you from: | the other side of the tracks |
Comments: | hey julie,
it was great to see you at the pratt flat - you look great - as always. your little lili is THE cutest!!! i will keep checking back for updates on surgery - and more cute pictures! |
| March 31, 2004 02:09:35 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| March 21, 2004 21:50:39 (GMT Time) |
Name: | Joyce Trivett |
Email: | joycetrivett@comcast.net |
HomePage: | http:// |
Where are you from: | Ellicott City MD |
Comments: | GOD BLESS Lili, her whole family, and all her health care staff! Good luck with the transplant. |
| March 7, 2004 19:54:29 (GMT Time) |
Name: | Amber |
Email: | ATu1002965@aol.com |
HomePage: | http:// |
Where are you from: | |
Comments: | I forgot to tell you where I'm from.
I now live in Texas but I grew up in Huntington West Virginia! |
| Febuary 19, 2004 04:58:28 (GMT Time) |
Name: | Amber |
Email: | ATu1002965@aol.com |
HomePage: | http:// |
Where are you from: | |
Comments: | Julie,
Just wanted to let you know I voted for Lili tonight. She is by far the cutiest baby!
I'm so glad she is doing so well! You are very lucky to have her! And she is lucky to have you too :)
Give her a kiss for me, and let her know I'm thinking of her and praying for her also.
God truly has blessed you with the beautiful Miss Lili! |
| Febuary 19, 2004 04:50:22 (GMT Time) |
Name: | Pat Ozga |
Email: | stanandpat@cs.com |
HomePage: | http:// |
Where are you from: | NJ |
Comments: | Yours is truly an inspirational story. Have you donated yet to Lili? How are you and your family doing? I donated akidney to a stranger July 2003 and doing fine but havne't met recip yet. |
| Febuary 18, 2004 00:51:11 (GMT Time) |
Name: | April Phillips |
Email: | amp918@yahoo.com |
HomePage: | http:// |
Where are you from: | Hemlock |
Comments: | Hi Jules and Lili! Glad to hear that everything is going great...please keep me updated. I hope to meet that beautiful little girl of yours soon! Kisses and hugs for you both!! Love and miss ya! April
P.S. Lili won that baby contest hands down!! She is the most beautiful baby by far! |
| Febuary 16, 2004 15:31:13 (GMT Time) |
Name: | Larry |
Email: | Lmiller@netrax.net |
HomePage: | http://www.caringbridge.org/pa/karenmiller |
Where are you from: | Littlestown, PA |
Comments: | Hi Julie,
Please visit our website about our kidney transplant journey at http://www.caringbridge.org/pa/karenmiller
Good luck and we will keep your family in our prayers.
Larry |
| Febuary 7, 2004 18:36:53 (GMT Time) |
Name: | Larry |
Email: | |
HomePage: | http:// |
Where are you from: | PA |
Comments: | Hi Julie,
I donated my left kidney to my daughter on December 16, 2003. I choose the open method, as my kidney was very large. The kidney started working right away and she is feeling so much better now! Praise the Lord! She is 24 years old and has IgA Nephropathy. I still have a little swelling and feel a little numb on my left side. I went back to work on January 12th. I don't feel any different with just one kidney. The transplant team said many donors are in better health after a kidney donation because they take a conscious effort to keep themselves in better shape. I would do it all over again as it was a wonderful feeling to give the gift of life to my daughter.
PS. She says she now has two birthdays!
|
| Febuary 7, 2004 18:30:49 (GMT Time) |
Name: | karen petratos |
Email: | angkar@usa.com |
HomePage: | http:// |
Where are you from: | chicago Il |
Comments: | The pictures of her are so cute. I lover her cheeks! |
| Febuary 5, 2004 04:06:19 (GMT Time) |
Name: | karen petratos |
Email: | angkar@usa.com |
HomePage: | http:// |
Where are you from: | chicago Il |
Comments: | |
| Febuary 5, 2004 04:03:02 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| Febuary 3, 2004 20:22:00 (GMT Time) |
Name: | Nena |
Email: | pdillon2@columbus.rr.com |
HomePage: | http:// |
Where are you from: | West Jefferson, OH |
Comments: | Julie, I first met you and Lili on the Infant Loss Board. We hadn't heard from you in a while so I came on over to check Lili out. I saw that you are a match for a kidney transplant. Will that take place any time soon? She is lovely. I'm so glad to hear that she is doing so well. Please come over to the Board once in a while and keep us posted. I know the others would like to hear how Lili is doing. We don't get a whole lot of success stories on our Board -- Lili is the one I talk about when others come to the Board and have been told that their babies won't survive. I think she gives them hope. |
| January 2, 2004 04:32:32 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| December 28, 2003 02:52:03 (GMT Time) |
Name: | Tammy Grandy |
Email: | hngrandy@aol.com |
HomePage: | http:// |
Where are you from: | |
Comments: | Hey Jules!!!!
What a beautiful little girl and a very inspiring story. Your website is so awesome. You Rock girl! I am so happy for you. Brian and I now have two boys of our own, Haidyn is four years old and Noah is fourteen months. They are our lives. Which is why when I began to read your story I just cried. I could never imagine going through everything that you have had to think about throughout your pregnancy and into the future. She absolutely is a miracle and I am so glad to see that everyone is enjoying her so much. She is a very strong little girl, but with all of the wonderful family and friends she has surrounding her she has a lot to fight for. As I read the captions and admired her pictures, it seems that she is going to be a lot like her mother when she grows up. (That was a compliment.)Congratulations guys! We are finding that parenting is very hard at times, but it is the most rewarding job we will ever have. I am looking forward to visiting your site again and finding |
| December 23, 2003 16:39:40 (GMT Time) |
Name: | Tammy Grandy |
Email: | hngrandy@aol.com |
HomePage: | http:// |
Where are you from: | |
Comments: | Hey Jules!!!!
What a beautiful little girl and a very inspiring story. Your website is so awesome. You Rock girl! I am so happy for you. Brian and I now have two boys of our own, Haidyn is four years old and Noah is fourteen months. They are our lives. Which is why when I began to read your story I just cried. I could never imagine going through everything that you have had to think about throughout your pregnancy and into the future. She absolutely is a miracle and I am so glad to see that everyone is enjoying her so much. She is a very strong little girl, but with all of the wonderful family and friends she has surrounding her she has a lot to fight for. As I read the captions and admired her pictures, it seems that she is going to be a lot like her mother when she grows up. (That was a compliment.)
Congratulation guys! We are finding that parenting is very hard at times, but it is the most rewarding job we will ever have.
Well I must go now it seems that my sons need some mom t |
| December 23, 2003 16:20:59 (GMT Time) |
Name: | Cindy Cribbs |
Email: | C.Cribbs@insightbb.com |
HomePage: | http:// |
Where are you from: | Louisville, Kentucky |
Comments: | I was your Mom's college roommate--boy can I tell Lili stories about her Grandma. I also have a sweet great neice named Lili--same spelling!!! I had talked to Carol Dwan not long ago and she told me about the story in the Saginaw News and then I got your Mom's Christmas card with this website in it.
My prayers are with all of you. Have a wonderful Christmas and a big hug to Grandma "Tirzah". |
| December 23, 2003 03:39:43 (GMT Time) |
Name: | Jim Newland |
Email: | jrnewland@core.com |
HomePage: | http:// |
Where are you from: | DeWitt MI |
Comments: | I was planning on calling you last weekend but when I spoke to Kathy she informed me you were in Chicago. Hope you had a great time. I'll try again next weekend. Love you all.
|
| December 21, 2003 13:12:10 (GMT Time) |
Name: | Linnette Hanson (ex-step) |
Email: | |
HomePage: | http:// |
Where are you from: | Williamston |
Comments: | Congratulations Julie and Bruce. I have gotten updates from Jim and have the 3 of you in my prayers. Have a Merry Christmas! |
| December 14, 2003 23:49:51 (GMT Time) |
Name: | debi |
Email: | debianne21@hotmail.com |
HomePage: | http:// |
Where are you from: | NC |
Comments: | I'm from the Noevember expecting club and i've been following your story for a while. She's so cute! I've just had my baby girl and could not imagine going through what you did.
Congrtulations on having such an adorable baby girl. |
| December 7, 2003 04:51:20 (GMT Time) |
Name: | Tammi Sue Wilkins |
Email: | wilkinst@michigan.gov |
HomePage: | |
Where are you from: | Grand Haven, MI |
Comments: | my parents brought your article from the Saginaw News to my house on Thanksgiving. thought i would see if i could reach you. she is beautiful!! looks like she is living a full and exciting life. love the drag queens - how cool is that!! hope things go smoothly for her - maybe i can meet her at Christmas mass?? luv ya kiddo t |
| December 3, 2003 20:57:40 (GMT Time) |
Name: | Nicole Davis |
Email: | countrygirloftexas@yahoo.com |
HomePage: | http:// |
Where are you from: | Texas |
Comments: | Hi I am a single Mom and have my second child they have given me no hope that my Bady ( i call Hope ) will live. She has one Kidney that is Mulitcystic and the other they told me never formd. There is no fluid around her at all. I am so scaerd and don't want to lose my baby. But I know that every thing is in God hands. Your story has be a inspiration to me and my mom thank you for telling Lily's story. |
| November 28, 2003 00:12:49 (GMT Time) |
Name: | Nena |
Email: | pdillon2@columbus.rr.com |
HomePage: | http:// |
Where are you from: | West Jefferson, OH |
Comments: | We met first last February or March when you came to the Infant Loss Board to tell us about Lili and her prognosis. I am co-CL on that Board. I, and I know others on the Board, have never stopped praying for Lili and she is an example I use when others tell us that their child is going to die. I tell them about Lili. She is beautiful. Congratulations on having this lovely little lady in your life. Please remember to post and let us know about the kidney donation. We like to hear the good stories on our Board. |
| November 27, 2003 00:59:24 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| November 26, 2003 22:53:17 (GMT Time) |
Name: | Kayla |
Email: | ckhawk21@aol.com |
HomePage: | http:// |
Where are you from: | Florida |
Comments: | Your little girl is beautiful!!!! Good Luck to all of you!!!
Kayla |
| November 26, 2003 17:49:32 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| November 25, 2003 22:51:12 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| November 25, 2003 00:51:58 (GMT Time) |
Name: | Amy (Fleming) Gray |
Email: | the4grays@wowway.com |
HomePage: | http:// |
Where are you from: | Hemlock |
Comments: | Hi Julie
I read about your BEAUTIFUL little girl and I just wanted to tell you that our prayers are with you and your family!
We are right around the corner in Sterling Heights - please let me know if there is ANYTHING I can ever do for you!
Amy
p.s. We graduated together from the big Hemlock High! Go Huskies!! :) |
| November 24, 2003 15:46:44 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| November 22, 2003 21:19:54 (GMT Time) |
Name: | Amanda Abbe (Honig) |
Email: | |
HomePage: | http:// |
Where are you from: | Freeland (Hemlock) |
Comments: | Julie,
Just wanted to say that your family is in our prayers and she is a doll. I knew you were a wonderful person years ago, and this only shows what a true blessing you are for your little girl.
Take care,
Amanda, Shawn, Hope and Faith Abbe |
| November 20, 2003 17:38:56 (GMT Time) |
Name: | Julie Newland |
Email: | janewland@hotmail.com |
HomePage: | http:// |
Where are you from: | Hemlock |
Comments: | Thank you all for your support! We couldn't do it without you! :) |
| November 20, 2003 12:58:37 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| November 20, 2003 12:56:11 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| November 20, 2003 12:47:02 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| November 20, 2003 06:46:10 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| November 19, 2003 03:26:45 (GMT Time) |
Name: | Bryan Wolinski |
Email: | bewolinski@aol.com |
HomePage: | http:// |
Where are you from: | |
Comments: | Congratulations again, Jules and Lili!!
We couldn't be happier for you! |
| November 19, 2003 01:56:12 (GMT Time) |
Name: | Debby Rae |
Email: | weirdeb@yahoo.com |
HomePage: | |
Where are you from: | Saginaw, Michigan |
Comments: | Thank you for sharing your beautiful story with us. Lili is a gift and what a joy she must be. I will be looking forward to following her story. God Bless you all. |
| November 18, 2003 19:19:15 (GMT Time) |
Name: | Deborah Korf |
Email: | adminsaginaw@earthlink.net |
HomePage: | http:// |
Where are you from: | chesaning, mi |
Comments: | I have heard of your daughter, Lili, from my daughter, Michelle Bobiney. She is Rachel Bobiney's mother and met you at Mott. Rachel had her kidney transplant on August 18, 2003, with Michelle as the donor. The transplant went perfectly, although they are currently at Mott with some post surgical problems. If you get a chance, please say hi to Michelle, as she has wondered how things are with you and your family. I know from reading your story in the Saginaw News that your daughter will do beautifully as has a long, bright future ahead of her. We have all been praying for her since she has been born and wish you all the best.
Deb Korf
(Rachel's granddaughter) |
| November 18, 2003 17:29:17 (GMT Time) |
Name: | Robin Ellis |
Email: | robyn5803@aol.com |
HomePage: | http:// |
Where are you from: | Gaylord, MI |
Comments: | What a wonderful, inspiring site. She's beautiful. I'm going to have to check back to keep up with her progress :). |
| November 18, 2003 15:15:26 (GMT Time) |
Name: | Jaime Millard |
Email: | jaimemsu@excite.com |
HomePage: | http:// |
Where are you from: | East Lansing, MI |
Comments: | I just read an article on mlive.com about your miracle baby...she's beautiful! Best wishes to all of you! |
| November 18, 2003 13:18:01 (GMT Time) |
Name: | Frank & Beth Izzo |
Email: | bfizzo@yahoo.com |
HomePage: | http:// |
Where are you from: | Saginaw MI (originally from Hemlock & St. Charles MI) |
Comments: | What a precious gift from God! Truly a miracle! I (Beth) am originally from Hemlock-living next door to Chris & Tina Berger for a number of years. I read about Lili in the Saginaw News. The web page is a wonderful idea. I had known Grandma & Grandpa Berger for years. Two wonderful people! We are the new grandparents of identical twin girls born on Oct.9, 2003 to our daughter Gretchen. I can hardly wait to tell her tomorrow about your little miracle. She will be happy to see the pictures, having grown up next door to some of Lili's family. We will keep Lili and her family in our prayers that her future will be healthy and all goes well with her transplant surgery.
God Bless You All!!
Frank & Beth Izzo Family |
| November 18, 2003 05:06:02 (GMT Time) |
Name: | Jim Newland Grandpa |
Email: | jrnewland @core.com |
HomePage: | http:// |
Where are you from: | DeWitt Mi |
Comments: | My Grand daughter is beautiful and full of surprises. |
| November 18, 2003 00:08:09 (GMT Time) |
Name: | Carol Greenough |
Email: | cgreenough@wanigas.com |
HomePage: | http:// |
Where are you from: | Wanigas Fed. Credit Union |
Comments: | Julie:
Just read the wonderful article in the Saginaw News. Lili is Beautiful! I'm glad she is doing so well. I passed this site to my sister, Susie Williams, and she was going to share it with Laura. I don't know if you heard but Laura has a little boy who has also spent a lot of time in Ann Arbor. I told Susie you two need to chat.
I pray that all continues to to well.
Carol |
| November 17, 2003 23:39:23 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| November 17, 2003 23:34:40 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| November 17, 2003 23:34:26 (GMT Time) |
Name: | Susie Williams (Laura's Mom) |
Email: | williams12301@chartermi.net |
HomePage: | http:// |
Where are you from: | Hemock |
Comments: | Julie,
Loved the web site. I will give Laura your email address so maybe you two can reconnect. She is busy with two children (Brenden 3 and Nicklas 14 1/2 months and teaching first grade in Battle Creek. Nicklas has lots of health issues and is presently being fed by a tube that splits into his small intestine for food and a tube into his stomach for his meds. He is on the pump 20 of the 24 hours of the day. Too much to go into now, but we sympathize with all you have gone through and are going through.
The Lord is good and prayer is such a good thing. I will keep Lili in my prayers.
Susie Williams
|
| November 17, 2003 23:33:42 (GMT Time) |
Name: | Carrie Dana |
Email: | cdana@commfamily.org |
HomePage: | http:// |
Where are you from: | Saginaw, Michigan |
Comments: | I was reading our local paper online about your sweetie, and I just had to check out your website. Might I say that you have one of the cutest babies in the world! I am a mother of two girls and I can see what a blessing you have. She is a true inspiration! I cannot believe that story.. isn't it great that Doctors can be SO wrong sometimes!! I don't even know you and I feel so happy just looking through your pictures and at your little sweetie. I will surely bookmark this page to see Lili's progress and updates. xoxoxo |
| November 17, 2003 21:58:45 (GMT Time) |
Name: | Trisha |
Email: | bean1tl@cmich.edu |
HomePage: | |
Where are you from: | Fremont Township, Saginaw County, MI |
Comments: | I found this link in the Saginaw News online within the story about Lili and I just wanted to say I am so happy for you and baby- may God Bless you and your family for years to come |
| November 17, 2003 21:33:44 (GMT Time) |
Name: | Robert Rae |
Email: | rrae@saginawcounty.com |
HomePage: | http:// |
Where are you from: | Saginaw, Mi |
Comments: | I too am a transplant donor-Kidney to my wife a few years back. Whoever is the the donor they deserve a lifetime of thanks to the child. I wish you all the best. More donors are needed. PS, our procedure was done at U of M, they are the best. |
| November 17, 2003 19:53:31 (GMT Time) |
Name: | Liz Messing (Riley Messer's wife) |
Email: | lmessing@chartermi.net |
HomePage: | http:// |
Where are you from: | Traverse City |
Comments: | I'm so glad Katherine sent me the info. about the article in the paper. What a special girl you have and what luck she has you for parents---that's my conclusion! Best wishes. |
| November 17, 2003 19:05:40 (GMT Time) |
Name: | Judy A. Henning |
Email: | judrich@juno.com |
HomePage: | |
Where are you from: | Saginaw |
Comments: | Hello,
I am a friend of your mom's and my husband and your dad worked together at one time.
Our son is a kidney transplant recipient. He receieved his kidney at the age of 21, he is soon to be 36 years old. He lost his kidneys due to a heriditary disease known as Alport syndrome. He was on peritoneal dialysis for two years, while a student at MSU. He received his kidney on Valentine Day, what a wonderful gift to him and to our family. He is doing well and working on his Phd. at the University of New Hampshire.
Your mom and dad were willing to share your story and Lili's web page with us. We have so enjoyed reading about all of you.
We will hold Lili and you in our hearts and in our prayers each day.
We will keep abreast of Lili's progress. Thank you for sharing your story with us.
Judy and Dick Henning |
| November 15, 2003 18:16:54 (GMT Time) |
Name: | Donna Engelhardt |
Email: | |
HomePage: | http:// |
Where are you from: | Chicago, IL |
Comments: | Keep the updates coming! I love to hear from you. Peace! Donna |
| November 13, 2003 05:48:39 (GMT Time) |
Name: | Liana Diaz |
Email: | AMLDIAZ2002@msn.com |
HomePage: | http:// |
Where are you from: | Tampa, Florida |
Comments: | Lili's story is so inspiring! I'm currently 31 weeks pregnant with a Potter's baby. I heard a little of Lili's story on the Potter's Forum. We are trusting in the Lord that our baby will too be a miracle baby like your Lili! She is truly a cutie! May the Lord bless her and your family! I pray she keeps getting better! She's a fighter!
Sincerely,
Liana Diaz |
| November 12, 2003 15:59:07 (GMT Time) |
Name: | sunshine |
Email: | soon_knee@yahoo.com |
HomePage: | http:// |
Where are you from: | chicago |
Comments: | luv the lilster...LUV, LUV, LUV her! can't wait to see her again either...
kisses to you all! |
| November 6, 2003 18:29:27 (GMT Time) |
Name: | Megan McCarty |
Email: | mmm7576@aol.com |
HomePage: | |
Where are you from: | Raleigh, NC |
Comments: | my sister is a nurse at mott and sent me the link to lili's page. what an amazing and beautiful little girl! |
| October 28, 2003 13:07:47 (GMT Time) |
Name: | Tara Egnor |
Email: | taraegg@att.net |
HomePage: | http:// |
Where are you from: | Ypsilanti, MI |
Comments: | It was my pleasure to take care of Lili while she was in the hospital. Lili is an angel and I loveed getting to know Julie and Bruce. I'm so happy Lili is doing so well and I hope that the future holds nothing but wonderful days full of songs and laughter. Love, Tara E from 6-Mott
|
| October 16, 2003 22:33:55 (GMT Time) |
Name: | Harvey & Peggy Nothelfer |
Email: | noodle421@mac.com |
HomePage: | http:// |
Where are you from: | Hemlock, Michigan |
Comments: | Lili sure does seem like a miracle baby. Our prayers are with you all. Drop us a line when you get a few minutes. Will be checking back at your website regularly. Love to all |
| October 14, 2003 14:52:59 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| October 14, 2003 00:39:04 (GMT Time) |
Name: | b |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| October 7, 2003 02:19:41 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| October 2, 2003 19:58:11 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| September 29, 2003 19:26:14 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| September 24, 2003 14:34:58 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| September 24, 2003 00:57:43 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| September 22, 2003 13:35:15 (GMT Time) |
Name: | ann dean |
Email: | ann_mustang@msn.com |
HomePage: | http:// |
Where are you from: | canada |
Comments: | you all are in my prayers and thoughts... hearing your story has made me so hopefull that miracles do happen. currently i am 33 weeks pregnanct and the doctors have told me that my baby has potters..... heaving your story makes me realize that miracles do happen and that i just have to have faith.... i pray that everything will continue to be fine with you and your family and little lili... |
| September 18, 2003 21:13:03 (GMT Time) |
Name: | Amber Turner |
Email: | Atu1002965@aol.com |
HomePage: | http:// |
Where are you from: | Texas |
Comments: | I just wanted to say that your little Lili is a real cutie. You are so lucky!!
My youngest son Wesley was born with no kidneys at all and died shortly after his birth, which by your story, the doctors thought your little Lili would do but she surprised them. I am so happy for you. What a fighter you have. I am holding you and Lili in my prayers. She will get that kidney transplant and live a very long life, I know she will.
This is also the perfect time to let people know just how important it is to donate organs. I have made it perfectly clear to my family that if anything ever happens to me, I want to be a donor. My oldest son has too, as one of his friends in High School had a heart transplant in their Sr. Year.She is doing great now.
Take care and give that beautiful little girl a big kiss from Texas! |
| September 18, 2003 12:49:27 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| September 18, 2003 04:56:31 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| September 16, 2003 04:06:30 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| September 13, 2003 16:47:46 (GMT Time) |
Name: | Garnett |
Email: | volkens@hotmail.com |
HomePage: | http:// |
Where are you from: | California--near Sacramento |
Comments: | I found your Web site because of your prayer request(World Prayer). I believe nothing is by chance. I pray God continues to bless Lili and your family. What a testimony! I was surprised on your 'Our Story' page that you referred to Grandma Berger. My Great Grandparents were Bergers. They came from PA to Ohio-Knox, Licking- Delaware Counties. I've been working real hard on the Genealogy. Also I want to say I was a Nurse for 22yrs. so I know a miracle when I see it. Praise the LORD! |
| September 13, 2003 03:01:08 (GMT Time) |
Name: | Cindy (Makayla's Grandma) |
Email: | |
HomePage: | http://www.angelmakayla.dabsol.co.uk |
Where are you from: | |
Comments: | What a miracle baby Lili is. She remains in our prayers. Thank you for sharing her. She's absolutely beautiful |
| September 12, 2003 21:01:39 (GMT Time) |
Name: | Kati Arnoldi |
Email: | ktarnoldi@aol.com |
HomePage: | http:// |
Where are you from: | Hoboken, NJ |
Comments: | I am Julie's cousin and I love checking in on Lili's progress and admiring the photos. She is just as beautiful as her Mommy! All my love! |
| September 12, 2003 18:20:04 (GMT Time) |
Name: | SUE YOUNG |
Email: | MARKRAMMIE@AOL.COM |
HomePage: | http://WWW.ANGELETHAN.DABSOL.CO.UK |
Where are you from: | DERBYSHIRE/ENGLAND |
Comments: | HI LILLI,YOU ARE THE SWEETEST LITTLE DARLING IVE EVER SEEN,AND YOUR MUMMY AND DADDY MUST BE SO PROUD OF YOU,KEEP FIGHTING DARLIN AND ALSO GIVE YOUR MUMMY AND DADDY MY DEAREST LOVE...SUE..XXXXX....[MUMMY TO ANGEL ETHAN] |
| September 12, 2003 12:20:30 (GMT Time) |
Name: | Holly - Sarah's Mommy |
Email: | |
HomePage: | http:// |
Where are you from: | Michigan (Potter's Forum) |
Comments: | Lili is a true miracle! What a blessing!!! I can't wait to meet her in person ... until then ... chow! |
| September 11, 2003 21:45:38 (GMT Time) |
Name: | Michael Nothelfer |
Email: | moquesha@avci.net |
HomePage: | http:// |
Where are you from: | Pigeon, MI |
Comments: | Way to go Lilli! Thanks for the page and the updates. For a friend that sucks at keeping in touch when he should, this link has almost everything I need to beleive everyone involved has created a true miracle baby! Keep up the prayers and keep up the good work Mommy, Daddy, and Lilli. This is one 'stranger' that can't wait to see you all living and loving. I love you Jules!
Michael |
| September 5, 2003 23:11:03 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| September 5, 2003 21:29:19 (GMT Time) |
Name: | Julie Nostrant |
Email: | julsmprice@netscape.net |
HomePage: | http:// |
Where are you from: | Portage, MI |
Comments: | We're so happy that Lili is doing well and that you all are enjoying her everyday. We thought of you often during your pregnancy and after. You are in our prayers. Julie, DeWayne, Maya, and Zoee |
| September 4, 2003 14:02:26 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| September 4, 2003 02:25:05 (GMT Time) |
Name: | |
Email: | |
HomePage: | http:// |
Where are you from: | |
Comments: | |
| September 3, 2003 19:20:52 (GMT Time) |
Name: | Becky McVey |
Email: | rmcvey@umich.edu |
HomePage: | http:// |
Where are you from: | |
Comments: | Hello! I'm so glad to have your number. With the move and some minor pregnancy complications (everything is fine) I lost it. I'm so thrilled that Lili is off dialysis. What a blessing! I've been praying for all of you and will get in touch soon. I promise.
Lots of love,
Becky |
| September 3, 2003 18:52:58 (GMT Time) |
Name: | April Phillips |
Email: | amp918@yahoo.com |
HomePage: | http:// |
Where are you from: | Hemlock, MI |
Comments: | What a great idea Jules! The website is awesome. I think about you and Lili all of the time and wonder how she is doing. Well, no more wondering. You and Lili are my heroes and an inspiration to me. I thank God for my children every day now, and I know that if something happened to them, I can draw strength from you and Lili and I know that I could get through it. So, thank you Jules, my dear sweet friend, and thank you Lili, my precious inspirational angel. |
| September 3, 2003 13:19:11 (GMT Time) |
Name: | Chris Stelter |
Email: | cstelter@kleintools.com |
HomePage: | http:// |
Where are you from: | Chicago |
Comments: | Hello from Chicago! Great website! I love all the pictures. You need a few with Uncle Jeff and Lili. Lili is looking wonderful. I'll keep checking back. Hope all is well! ~Stelter |
| September 3, 2003 13:18:04 (GMT Time) |
Name: | Julie McKenzie |
Email: | jules100298@yahoo.com |
HomePage: | http:// |
Where are you from: | Michigan! |
Comments: | This website is beautiful, as is Lili. I'm so glad to hear (read) that you all are doing well. Joy keeps me updated as much as she can...I ask about you all everytime I talk with her. Keep smiling...someone is obviously looking out for Lili! |
| September 3, 2003 03:43:53 (GMT Time) |
Name: | Eric Wielinski |
Email: | Wielinski@aol.com |
HomePage: | http:// |
Where are you from: | Egypt |
Comments: | cool page, very nice. all the best to the little one and to mom and dad too. take care guys
Eric |
| September 3, 2003 03:37:33 (GMT Time) |
Name: | julie |
Email: | janewland@hotmail.com |
HomePage: | http:// |
Where are you from: | Heaven |
Comments: | She's so beautiful!!! |
| September 3, 2003 03:18:40 (GMT Time) |
Name: | Trisha |
Email: | trishap44@aol.com |
HomePage: | http:// |
Where are you from: | Lansing, MI |
Comments: | What an awesome idea!! I love this site and I'll share with other people interested in Lili's successes!! Love, Trisha |
| September 3, 2003 02:30:52 (GMT Time) |
Name: | brandon ross aka baseshot scenario |
Email: | septranate@aol.com |
HomePage: | http:// |
Where are you from: | chicago, il baybee |
Comments: | lili is so illin' lilitronic yo! she's all lili-flavored and bionic. she's the mack-a-dociousiest lil' lilister, mix her with some tonic...according to her mom, she's hella poop-phonic. and i lover her... |
| September 3, 2003 01:21:46 (GMT Time) |
Name: | chris |
Email: | clopezne@genesys.org |
HomePage: | http:// |
Where are you from: | i work with your cousin karen ryan |
Comments: | i have been following lilis story and i must say she is an amazing little angel. i work with your cousin at genesys, im so glad that lili is doing well and i love looking at the pictures and reading her stories.. |
| September 2, 2003 11:41:19 (GMT Time) |
Name: | Kate |
Where are you from: | la la land |
Comments: | cute! |
How do you know Lili?
| |
| August 26, 2003 22:02:00 (GMT Time) |
|
|